Saturday June 13

This morning, John had dialysis and this seemed to make him a bit restless and especially tired. When he is agitated, he pulls his hands and his feet toward his chest and raises his head off the bed. His heart rate and blood pressure is good which tells us that he is not in pain. He continues to run a low grade temperature and this afternoon, he is scheduled for a catscan of his abdomen to double-check whether an infection might be causing the fever. We continue to monitor each and every little thing and try not to get too hung up on worrying but at times, we want so badly for everything to be okay that we forget where we were just a week ago. At that time, we were hopeful for John to open his eyes and desperately waiting for signs of neurological improvement. While we still wait for further improvement, we simply cannot ignore the leaps and bounds John has made in his journey. On the weekends, our usual physicians are off and their partners take over so we do not expect any big changes in medical protocol until Monday. They come in daily but on weekends, the place has an eerie stillness to it. There are fewer people traversing the hallways and fewer people in the waiting areas except for those of us waiting for the next visiting time. The usual hustle and bustle of cleaning folks, and support staff is gone and there is a peacefulness about it.

I figure that John is just keeping his usual schedule of weekends off and maybe he was squeezing in a round of 18 holes at one of his favorite courses or doing some fishing in his safe place. Maybe he has just made the turn and hit a beautiful drive off of the 10th tee or maybe he is catching huge trout and fighting redfish at the coast. Either way, the most important thing is that he is being kept comfortable and is resting.